CureGN Study Rationale, Design, and Methods: Establishing a Large Prospective Observational Study of Glomerular Disease.

Laura H. Mariani,Andrew S. Bomback,Pietro A. Canetta,Michael F. Flessner,Margaret Helmuth,Michelle A. Hladunewich,Jonathan J. Hogan,Krzysztof Kiryluk,Patrick H. Nachman,Cynthia C. Nast,Michelle N. Rheault,Dana Rizk,Howard Trachtman,Scott E. Wenderfer,Corinna Bowers,Peg Hill-Callahan,Maddalena Marasa,Caroline J. Poulton, Adelaide Revell,Suzanne Vento,Laura Barisoni,Dan Cattran,Vivette D'Agati,J. Charles Jennette,Jon B. Klein,Louis-Philippe Laurin,Katherine Twombley,Ronald J. Falk,Ali G. Gharavi,Brenda W. Gillespie,Debbie S. Gipson,Larry A. Greenbaum,Lawrence B. Holzman,Matthias Kretzler,Bruce Robinson,William E. Smoyer,Lisa M. Guay-Woodford,Wooin Ahn,Gerald B. Appel,Revekka Babayev,Ibrahim Batal, Eric Brown,Eric S. Campenot,Pietro Canetta,Lucrezia Carlassara, Brenda Chan,Debanjana Chatterjee,Vivette D. D'Agati,Elisa Delbarba,Samriti Dogra,Hilda Fernandez,Bartosz Foroncewicz,Gian Marco Ghiggeri, William H. Hines,S. Ali Husain,Namrata G. Jain,Pascale Khairallah,Byum Hee Kil,Anushya Jeyabalan, Wai L. Lau,Fangming Lin,Francesca Lugani,Glen Markowitz,Sumit Mohan,Xueru Mu,Krzysztof Mucha,Thomas L. Nickolas,Stacy Piva,Jai Radhakrishnan,Maya K. Rao,Renu Regunathan-Shenk,Simone Sanna-Cherchi,Dominick Santoriello,Shayan Shirazian,Michael B. Stokes, Natalie Yu,Anthony M. Valeri, Ronald Zviti,Amira Al-Uzri, Josephine Ambruzs,Isa Ashoor,Diego Aviles,Rossana Baracco,John Barcia,Sharon Bartosh,Craig Belsha,Michael C. Braun,Yi Cai, Vladimir Chernitskiy,Aftab Chishti,Donna Claes, Kira Clark,Carl Cramer,Keefe Davis, Amy Dutcher,Elif Erkan,Daniel Feig,Michael Freundlich,Joseph Gaut,Rasheed Gbadegesin,Melisha Hanna,Guillermo Hidalgo,David Hooper,Tracy E. Hunley,Amrish Jain,Mahmoud Kallash, Margo Kamel,Myda Khalid,Theresa Kump,Jerome C. Lane,Helen Liapis,John Mahan, Nisha Mathews,Carla Nester,Cynthia Pan,Larry Patterson, Hiren Patel, Alice Raad,Cynthia Silva,Rajasree Sreedharan,Tarak Srivastava,Julia Steinke,Susan Sumner,Tetyana L. Vasylyeva,Chia-shi Wang,Donald J. Weaver,Craig S. Wong, Hong Yin,Anand Achanti,Salem Almaani,Isabelle Ayoub, Milos Budisavljevic, Maggie D'Angelo,Vimal Derebail,Huma Fatima,Ronald Falk,Agnes Fogo,Keisha Gibson,Dorey Glenn,Susan Hogan,Koyal Jain,Bruce Julian,Jason Kidd, H. Davis Massey,Amy Mottl,Shannon Murphy,Tibor Nadasdy,Jan Novak,Samir Parikh,Caroline Poulton, Thomas Brian Powell,Bryce Reeve,Matthew Renfrow,Monica Reynolds,Brad Rovin,Virginie Royal,Manish Saha,Neil Sanghani,Sally Self,Sharon Adler,Nada Alachkar,Charles Alpers,Raed Bou Matar,Carmen Avila-Casado,Serena Bagnasco,Emily Brede,Elizabeth Brown,Daniel Cattran, Michael Choi,Gabriel Contreras,Katherine M. Dell,Darren Dewalt,Michelle Denburg, Ram Dukkipati,Fernando C. Fervenza,Alessia Fornoni,Crystal Gadegbeku,Patrick Gipson, Anny Gonzalez-Zea, Leah Hasely,Elizabeth Hendren,Sangeeta Hingorani,Michelle Hladunewich,Jonathan Hogan,Jean Hou,J. Ashley Jefferson,Kenar Jhaveri,Duncan B. Johnstone,Frederick Kaskel,Amy Kogan,Jeffrey Kopp,Richard Lafayette,Kevin Lemley,Laura Malaga-Dieguez,Kevin Meyers,Alicia Neu, Michelle Marie O'Shaughnessy,John F. O'Toole,Andrea Oliverio,Matthew Palmer,Rulan Parekh,Renee Pitter,Heather Reich,Kimberly Reidy, Helbert Rondon,Kamalanathan K. Sambandam,Matthew Sampson,John R. Sedor,David T. Selewski,Christine B. Sethna,Jeffrey Schelling,John C. Sperati, Agnes Swiatecka-Urban,Katherine R. Tuttle,Meryl Waldman,Joseph Weisstuch,Roger Wiggins, David Williams,Cheryl Winkler,Eric Young,Olga Zhdanova, Charlotte Beil,Richard Eikstadt,Brenda Gillespie, John Graff,Stephen Hewitt,Emily Herreshoff,Chrysta Lienczewski,Sarah Mansfield,Laura Mariani,Keith McCullough, Nicholas Moore,Bruce M. Robinson, Melissa Sexton,Jonathan Troost, Matthew Wladkowski,Jarcy Zee, Dawn Zinsser

Glomerular Diseases（2023）

Cited 78|Views67

Key words

Glomerular disease,CureGN,minimal change disease (MCD),focal segmental glomerulosclerosis (FSGS),membranous nephropathy (MN),IgA nephropathy (IgAN),IgA vasculitis (IgAV),Henoch-Schönlein purpura,glomerulonephropathy,longitudinal cohort,digital pathology repository,kidney biopsy,patient-reported outcome (PRO),study design,estimated glomerular filtration rate (eGFR),pediatric,adult

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