A Participatory Framework for Plain Language Clinical Management Guideline Development

Vanessa dos Reis Ferreira,Rita Francisco,Susana Alves, Catarina Gomes,Pedro Granjo,Carlota Pascoal,Sandra Brasil,Alice Neves, Ines Santos, Andrea Miller,Donna Krasnewich,Eva Morava,Christina Lam,Jaak Jaeken,Paula A. Videira

CURRENT MEDICAL RESEARCH AND OPINION（2023）

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clinical management guidelines,plain language,people-centric,congenital disorders of glycosylation (CDG),PMM2-CDG,rare diseases,participatory medicine,health literacy

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