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Assessing the Quality and Value of Metabolic Chart Data for Capturing Core Outcomes for Pediatric Medium-Chain Acyl-Coa Dehydrogenase (MCAD) Deficiency

Ryan Iverson,Monica Taljaard,Michael T. Geraghty,Michael Pugliese,Kylie Tingley,Doug Coyle,Jonathan B. Kronick,Kumanan Wilson,Valerie Austin,Catherine Brunel-Guitton,Daniela Buhas,Nancy J. Butcher,Alicia K. J. Chan,Sarah Dyack,Sharan Goobie,Cheryl R. Greenberg,Shailly Jain-Ghai,Michal Inbar-Feigenberg,Natalya Karp,Mariya Kozenko,Erica Langley,Matthew Lines,Julian Little,Jennifer MacKenzie,Bruno Maranda,Saadet Mercimek-Andrews,Aizeddin Mhanni,John J. Mitchell,Laura Nagy,Martin Offringa,Amy Pender,Murray Potter,Chitra Prasad,Suzanne Ratko,Ramona Salvarinova,Andreas Schulze,Komudi Siriwardena,Neal Sondheimer,Rebecca Sparkes,Sylvia Stockler-Ipsiroglu, Kendra Tapscott,Yannis Trakadis,Lesley Turner,Clara Van Karnebeek,Anthony Vandersteen,Jagdeep S. Walia,Brenda J. Wilson,Andrea C. Yu,Beth K. Potter,Pranesh Chakraborty

BMC Pediatrics（2024）

引用 0|浏览45
关键词
MCAD deficiency,Core outcome set,Data quality
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