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    • Haemophilia : the official journal of the World Federation of Hemophilia Journal

    Papers
    Emerging and Receding Risks of Therapeutic Regimens for Haemophilia
    A Farrugia,CS Manno,BL Evatt
    Haemophilia（2004）SCI 2区SCI 3区
    During the past two decades, the improvement of therapeutic agents for the management of haemophilia has created the opportunity for individuals with haemophilia to live normal lives. However, in some instances, the progress made has been accompanied by emergence of unexpected ri...
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    Occupational Integration of Adults with Severe Haemophilia (INTHEMO): A Study Based on the FranceCoag Registry
    Ngoc Anh Thu Nguyen,Pascal Auquier,Any Beltran Anzola,Roseline d'Oiron,Christine Biron-Andreani,Anne Lienhart,Antoine Rauch,Karine Baumstarck,Mohamed Boucekine,Vanessa Milien,Natacha Rosso-Delsemme,Clemence Tabele,
    Haemophilia（2023）SCI 2区SCI 3区
    Among the members of the fibroblast growth factor receptor family the FGFR4 has demonstrated strong dependence on heparin-like material for its activation by fibroblast growth factors. We have produced and characterized a recombinant human FGFR4 extracellular domain (FGFR4ed), in...
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    Effect of a Self‐help Program for Mothers of Hemophilic Children in Korea
    H. S. Kang,W. O. Kim,Y. Jeong,S. Y. Kim,K. Y. Yoo
    Haemophilia（2012）SCI 2区SCI 3区
    SummaryMothers of hemophilic children are under stressful situations because of the characteristics of disease and inheritance. The purpose of this study was to evaluate the effect of the self‐help group program for the mothers of hemophilic children. Fifty one mothers of hemophi...
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    Clinical Guidelines for Treating Von Willebrand Disease Patients Who Are Not Candidates for DDAVP — a Survey of European Physicians
    JM Lusher
    Haemophilia（1998）SCI 2区SCI 3区
    While certain plasma-derived factor VIII/von Willebrand factor (FVIII/vWF) concentrates have proven to be quite useful in preventing or controlling bleeding in persons with von Willebrand disease who are not candidates for DDAVP, most of the information concerning dosage and effe...
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    Discrepancy in Von Willebrand Factor Activity Determined by Ristocetin Cofactor and Immunotubidometric Assays
    C. Reilly-Stitt,J. Coppell,A. D. Mumford
    Haemophilia（2014）SCI 2区SCI 3区
    HaemophiliaVolume 20, Issue 4 p. e341-e344 Letter to the Editor Discrepancy in von Willebrand factor activity determined by ristocetin cofactor and immunotubidometric assays C. Reilly-Stitt, C. Reilly-Stitt Department of Haematology, University Hospitals NHS Foundation Trust, Bri...
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    A Comparison of Traditional Vs. Canadian Tailored Prophylaxis Dosing of Prophylactic Factor Infusions in Children with Haemophilia A and B in a Single Hemophilia Treatment Center
    C. Dodd,R. G. Watts
    Haemophilia（2012）SCI 2区SCI 3区
    . Prophylactic infusion of clotting factor concentrates is a developing standard of care for individuals with haemophilia. The ideal schedule and techniques of prophylactic infusions remain incompletely defined. Our aim was to determine the optimal techniques and schedules for fa...
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    Third Trimester Amniocentesis for Diagnosis of Inherited Bleeding Disorders Prior to Delivery
    J. Cutler,L. C. Chappell,P. Kyle,B. Madan
    Haemophilia（2013）SCI 2区SCI 3区
    X-linked and autosomally inherited bleeding disorders confer a risk of foetal intracranial haemorrhage during delivery. Conventional prenatal diagnosis involving chorionic villus sampling or early amniocentesis is primarily aimed at offering the choice of pregnancy termination. C...
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    Achieving the unimaginable: Health equity in haemophilia
    Mark W. Skinner,Diane Nugent,Pam Wilton,Brian O'Mahony,Gerry Dolan,Jamie O'Hara,Erik Berntorp
    Haemophilia（2020）SCI 2区SCI 3区
    Historically, treatment based on the availability of clotting factor replacement has resulted in an arcane guideline for the correction of factor deficiencies in people with haemophilia (PwH). While all other disease entities seek to restore function to a normal level, PwH are re...
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    Promoting physical activity for people with haemophilia in the age of new treatments
    Ruth Elise D. Matlary,Nathalie Grinda,Fionnuala Sayers,Olav Versloot,Paul McLaughlin
    Haemophilia（2022）SCI 2区SCI 3区
    Haemophilia treatment has seen great advances in recent years with an accompanied reduced risk of physical activity (PA) related bleeds. Based on its known health benefits, people with haemophilia (PWH) are currently encouraged to regularly engage in PA. However, this may not alw...
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    Prevalence And Spectrum Of Von Willebrand Disease In Iran
    M. Hashemi Soteh,M. Jazebi,S. Ravanbod,H. Karami, A. Chupan,F. Ala
    Haemophilia（2008）SCI 2区SCI 3区
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